UPDATE: The state has reinstated the kids Medicaid. God is good!
Did you know that if your disabled child has a Kentucky Medicaid waiver and then applies for SSI the State of Kentucky will discontinue your child's Medicaid immediately? Yep, they just leave your child high and dry. This just happened to six of our children who have significant disabilities. No medical coverage, no therapy, no medical supplies, no in home services.
It was an easy way for Kentucky to get out of spending state funds. As soon as the state discovered the kids qualified for SSI the state government said hey we don't have to pay any more let the federal government do it. So instead of waiting until SSI is processed and approved they just left us high and dry. It could take 6 months or more to get a decision from SSI. Is this even ethical?
I was made available for adoption when I was about 9 months old.
My future was bright!
Two and a half years go by. I am growing into a strong little boy.
I am still hopeful that I will find my forever family.
Hope was fading. Why haven't I been chosen?
The orphanage began completing paperwork to declare me unadoptable
because I had become too weak and frail.
FINALLY it was my turn. I was Chosen!
(home 3 months)
I begin to grow and thrive. Joy returns.
(home 5 months)
Family Changes Everything!
When we adopted David he weighted a little over 16 pounds at 4 years old. He gained 5 pounds in the first 2 weeks. Five months later and he has doubled his weight. He has learned to walk, talk, and feed himself. David has had no medical intervention or therapy. The only thing we have done is feed him and love him. Family changes everything! Family gives HOPE!
and I have adopted several children with disabilities.We do have private insurance, however, as you
may already know or have experienced private insurance does not provide a lot
of the services children with significant needs require.As we
discovered each child’s needs we advocated for them and were able to get
Kentucky State Medicaid Waivers for each of them.These waivers provide in home services,
community services, and Medicaid insurance.Our children have had these waivers for several years now.
the advice of several providers, we applied for SSI for the children.To our surprise our children’s Medicaid was
immediately discontinued upon filing the SSI application.They lost all in home services, Medicaid
insurance, therapy, and medical supplies they received through the State
many phone calls and doing research online I was informed that there is a policy
that states a person cannot have an application with DCBS and SSI at the same
time.We were never informed this prior
to making the application.
MS 4650 “An application for SSI
pending with the SSA is also an application for Aged, Blind, or Disabled
MA.Deny any duplicate application for
Aged, Blind, or Disabled MA made with DCBS”
I was also
informed that this is an automatic computer generator procedure in which there
is no room for interpretation.During the time that the SSI application is
being reviewed Medicaid will be discontinued.As we all know the application process is not a quick process and could
take up to 6 months or longer.During
that time our children will not have any needed services provided by Medicaid
or the Medicaid Waiver.
It is my
opinion that although this policy makes sense its generalized application does
not. Yes if my children were applying
for SSI and Medicaid at the same time it would be a duplicate application. However, in the case of my children they
already had Medicaid.It was NOT a duplicate application.A
service that they qualify for and have been receiving for several years has
been stopped. They can no longer
receive therapy and they no longer have in home services. We have in home medical supplies which Medicaid
has been providing, which includes feeding tube supplies that will no longer be
since discovered other children have also lost their Medicaid due to this
policy.Something needs to change.Where is the continuance of services?Medicaid should not be stopped on application
but should continue until SSI is approved or denied. Please help us spread the word!
A year ago I began a journey to get healthy. I had become tired and worn out. I was not feeling well and having a hard time dragging myself out of the bed. I feel amazing now! So much energy. I would be happy to share more information with you individually if you are interested.
Let me clarify before I continue, this is an expedited adoption. The in country adoption process was also expedited so what you are about to read is not typical for GOTCHA day.
Had breakfast at the hotel and prepared to meet Joshua. We went to the store to pick up a few things. This was something I had never done, escalator for your grocery cart.
We had to complete some paperwork this morning before we met him. We arrived at the Official Office to meet Joshua and he had not arrived yet. We were the only family there at the time. We scheduled an early appointment so we could get Joshua to the hospital right after we met him.
As we waited they walked around the corner. Joshua was a little smaller than I expected. He was quiet. We went into the officials office for the "official" meeting. He came to me easily. He fussed a little after a few minutes. He threw a little temper tantrum. All in all it was a pretty easy transition compared to some I have experienced.
We went straight to the hospital to hopefully get some guidance on his current condition and another blood test. Unfortunately, all we got was "he needs to be in the hospital for a long time so we can run tests". Well, that was not going to work for me!
We headed back to the hotel to find food and prepare for the next day. That evening we headed out to People's Park for a little stroll. We took lots of selfies.
Looking back on this day is kinda a blur. It was that morning I realized we were in for an interesting trip. I consulted with our pediatrician back home and she advised me on the seriousness of Joshua's current condition and that it would not be safe to fly without him using oxygen. After research we discovered that oxygen was not an option on flights within China.
We met our guide after breakfast to head to Nanning, Guangxi to meet Joshua. On the way to the airport I shared with her what our pediatrician had advised. We had to come up with a quick plan as we were to meet Joshua the next morning and then fly with him the day after.
I know they were a little concerned about us but sometimes you gotta do what ya gotta do. The ONLY other option than flying was a 18 hour overnight train ride alone without a guide. Our agency guide said she would take care of everything and explain it to our guide in Nanning.
Miranda and I hopped on the 3 1/2 hour flight to Nanning.
Our wonderful guide met us at the airport, helped us settle into the hotel and get some groceries. We had a little extra time so we walked around People's Park. It was nice there about 70 degrees. A far cry from the freezing weather of Beijing.